Twin to Twin Transfusion Syndrome Australia Inc.


There is such a wide variety of web sites and groups available on the Internet. Some of these sites have been categorised in the following groups:

  • Australian Hospitals
  • Other TTTS Sites
  • Multiple Birth Information
  • Bereavement Support
  • Other Sites of Interest

If you know of a web site that you think would be beneficial for this list, please email us. 

Australian Hospitals Hospital Maternal Fetal Medicine– Twin-to-Twin Transfusion Syndrome
Mater Mothers’ Hospital
Raymond Terrace
South Brisbane QLD 4101
Phone Enquiries: (07) 3840 1896 Maternal Fetal Medicine Service of Western Australia
King Edward Memorial Hospital
374 Bagot Road
Subiaco 6008
Western Australia
[email protected]
[email protected]
[email protected]
NSW Twin-Twin Transfusion Treatment Group – consists of Westmead Hospital, Royal Hospital for Women, Randwick, Liverpool Hospital and Westmead Centre
Other TTTS sitesTop
http://www.twin2twin.orgTwin2Twin (UK)
Information, support, parents’ stories
http://www.tttsfoundation.orgTwin-to-Twin Transfusion Syndrome Foundation (USA)
Medical information, treatment options
http://www.fetalmd.comFlorida Institute for Fetal Diagnosis and Therapy (USA)
Medical information, message board
http://www.TTTSMD.orgThe International Institute for the treatment of Twin to Twin Transfusion Syndrome (USA) – Dr J De Lia’s Run
Conor’s Run is an annual charity event commemorating Conor Archibald who passed away due to conditions caused by TTTS.
Multiple Birth Information Multiple Birth Association
PO BOX 105
Support from “those who know” Society for Twin Studies of Kansas Medical Center – links relating to multiple birth organizations, print & website resources that may be helpful for parents facing the challenges of raising multiples, working through loss of one or more multiples, or raising one or more premature or special needs child(ren). everything you need to know about multiple birth
Bereavement Support Birth Association Bereavement Support Group (M-BABS)
Australian contact for the Center for Loss in Multiple Birth (CLIMB), Inc Lutheran SISS (Stillborn Infant Support Service) – information and support for loss in a multiple pregnancy. Founded and Co-ordinated by Lynne Schulz, author of “The Diary”. Babes Foundation
The Bonnie Babes Foundation is a non-profit organisation established to counsel families grieving after the loss of a baby from miscarriage, stillbirth or prematurity and to assist medical research.
Ph: (03) 9800 0322
Fax: (03) 9800 0311
Email [email protected] – Stillbirth And Neonatal Death Support
SANDS is there…. promoting awareness, knowledge, support and understanding following the death of a baby from the time of conception through to infancy. It is a support group for parents who experience miscarriage, stillbirth, and newborn death.
SANDS Australia National Council Inc.
PO BOX 934
Ph (07) 3254 3422 (SANDS Q)
Fax (07) 3358 2533(SANDS Q)
Email [email protected] – Aussie Mums of Surviving Twins – a group of mothers who support each other through the and Multiple Birth Loss, NZ Official Site of Pregnancy and Infant Loss Remembrance Day – October 15.
Other Sites of Interest Inc. – Provides friendship, information and support to parents of premature babies and information for families with premature babies Infants Parents Association (Qld) Trauma And Birth Stress, is a Charitable Trust that serves as a support group of mothers who have stressful and traumatic pregnancies or births which affect their lives negatively for months or years afterwards. site is packed full of information on pregnancy, baby and toddler services