Twin to Twin Transfusion Syndrome Australia Inc.
Links
There is such a wide variety of web sites and groups available on the Internet. Some of these sites have been categorised in the following groups:
- Australian Hospitals
- Other TTTS Sites
- Multiple Birth Information
- Bereavement Support
- Other Sites of Interest
If you know of a web site that you think would be beneficial for this list, please email us.
| Australian Hospitals | |
| http://www.mater.org.au/healthservices/clinical/mfm/ttts.asp | Mater Hospital Maternal Fetal Medicine– Twin-to-Twin Transfusion Syndrome Mater Mothers’ Hospital Raymond Terrace South Brisbane QLD 4101 Phone Enquiries: (07) 3840 1896 |
| http://wchs.health.wa.gov.au/services/ttts/ | The Maternal Fetal Medicine Service of Western Australia King Edward Memorial Hospital 374 Bagot Road Subiaco 6008 Western Australia |
| [email protected] [email protected] [email protected] | NSW Twin-Twin Transfusion Treatment Group – consists of Westmead Hospital, Royal Hospital for Women, Randwick, Liverpool Hospital and Westmead Centre |
| Other TTTS sites | Top |
| http://www.twin2twin.org | Twin2Twin (UK) Information, support, parents’ stories |
| http://www.tttsfoundation.org | Twin-to-Twin Transfusion Syndrome Foundation (USA) Medical information, treatment options |
| http://www.fetalmd.com | Florida Institute for Fetal Diagnosis and Therapy (USA) Medical information, message board |
| http://www.TTTSMD.org | The International Institute for the treatment of Twin to Twin Transfusion Syndrome (USA) – Dr J De Lia |
| http://www.angelfire.com/nj3/conor11/run | Conor’s Run Conor’s Run is an annual charity event commemorating Conor Archibald who passed away due to conditions caused by TTTS. |
| Top | |
| Multiple Birth Information | |
| http://www.amba.org.au | Australian Multiple Birth Association PO BOX 105 COOGEE NSW 2034 Support from “those who know” |
| http://www.ists.qimr.edu.au | International Society for Twin Studies |
| http://www.kumc.edu/gec/support/twin.html | University of Kansas Medical Center – links relating to multiple birth |
| http://www.synspectrum.com/multiplicity.html | Lists organizations, print & website resources that may be helpful for parents facing the challenges of raising multiples, working through loss of one or more multiples, or raising one or more premature or special needs child(ren). |
| http://multiples.about.com/cs/ttts/index.htm | Lists everything you need to know about multiple birth |
| Top | |
| Bereavement Support | |
| http://www.amba.org.au/bereavement/index.php | Multiple Birth Association Bereavement Support Group (M-BABS) Australian contact for the Center for Loss in Multiple Birth (CLIMB), Inc |
| http://www.lm.net.au/~schulz/siss | Murraylands Lutheran SISS (Stillborn Infant Support Service) – information and support for loss in a multiple pregnancy. Founded and Co-ordinated by Lynne Schulz, author of “The Diary”. |
| http://www.bbf.org.au/home.asp | Bonnie Babes Foundation The Bonnie Babes Foundation is a non-profit organisation established to counsel families grieving after the loss of a baby from miscarriage, stillbirth or prematurity and to assist medical research. Ph: (03) 9800 0322 Fax: (03) 9800 0311 Email [email protected] |
| http://www.sands.org.au | SANDS – Stillbirth And Neonatal Death Support SANDS is there…. promoting awareness, knowledge, support and understanding following the death of a baby from the time of conception through to infancy. It is a support group for parents who experience miscarriage, stillbirth, and newborn death. SANDS Australia National Council Inc. PO BOX 934 NEW FARM Q 4005 Ph (07) 3254 3422 (SANDS Q) Fax (07) 3358 2533(SANDS Q) Email [email protected] |
| http://groups.yahoo.com/group/OzMOST | OzMOST – Aussie Mums of Surviving Twins – a group of mothers who support each other through the |
| http://www.twinloss.org.nz | Twin and Multiple Birth Loss, NZ |
| http://www.october15th.com/ | The Official Site of Pregnancy and Infant Loss Remembrance Day – October 15. |
| Other Sites of Interest | |
| http://www.austprem.org.au | Austprem Inc. – Provides friendship, information and support to parents of premature babies |
| http://www.premmieplus.org.au | Support and information for families with premature babies |
| http://www.pipa.org.au | Preterm Infants Parents Association (Qld) |
| http://www.tabs.org.nz | Trauma And Birth Stress, is a Charitable Trust that serves as a support group of mothers who have stressful and traumatic pregnancies or births which affect their lives negatively for months or years afterwards. |
| http://www.bubhub.com.au | This site is packed full of information on pregnancy, baby and toddler services |