Twin to Twin Transfusion Syndrome Australia Inc.

A Member Group of the Australian Multiple Birth Association
 

Links

There is such a wide variety of web sites and groups available on the Internet. Some of these sites have been categorised in the following groups:

If you know of a web site that you think would be beneficial for this list, please email us. 

Australian Hospitals

 

http://www.mater.org.au/healthservices/clinical/mfm/ttts.asp

Mater Hospital Maternal Fetal Medicine– Twin-to-Twin Transfusion Syndrome
Mater Mothers’ Hospital
Raymond Terrace
South Brisbane QLD 4101
Phone Enquiries: (07) 3840 1896
 

http://wchs.health.wa.gov.au/services/ttts/

The Maternal Fetal Medicine Service of Western Australia
King Edward Memorial Hospital
374 Bagot Road
Subiaco 6008
Western Australia
 

Dan@challis.com.au
John.Smoleniec@swsahs.nsw.gov.au
Neila@westgate.wh.usyd.edu.au

NSW Twin-Twin Transfusion Treatment Group - consists of Westmead Hospital, Royal Hospital for Women, Randwick, Liverpool Hospital and Westmead Centre
 

andrew1000@bigpond.com

Monash Medical Centre (Melbourne) - now performing Placental Laser Ablation
 

Other TTTS sites

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http://www.twin2twin.org

Twin2Twin (UK)
Information, support, parents’ stories
 

http://www.tttsfoundation.org

Twin-to-Twin Transfusion Syndrome Foundation (USA)
Medical information, treatment options
 

http://www.fetalmd.com

Florida Institute for Fetal Diagnosis and Therapy (USA)
Medical information, message board
 

http://www.TTTSMD.org

The International Institute for the treatment of Twin to Twin Transfusion Syndrome (USA) - Dr J De Lia
 

http://www.angelfire.com/nj3/conor11/run

Conor's Run
Conor's Run is an annual charity event commemorating Conor Archibald who passed away due to conditions caused by TTTS.
 

 

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Multiple Birth Information

 

http://www.amba.org.au

Australian Multiple Birth Association
PO BOX 105
COOGEE NSW 2034
Support from "those who know"
 

http://www.ists.qimr.edu.au

International Society for Twin Studies
 

http://www.kumc.edu/gec/support/twin.html

University of Kansas Medical Center - links relating to multiple birth
 

http://www.synspectrum.com/multiplicity.html

Lists organizations, print & website resources that may be helpful for parents facing the challenges of raising multiples, working through loss of one or more multiples, or raising one or more premature or special needs child(ren).
 

http://multiples.about.com/cs/ttts/index.htm

Lists everything you need to know about multiple birth

 

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Bereavement Support

 

http://www.amba.org.au/bereavement/index.php

Multiple Birth Association Bereavement Support Group (M-BABS)
Australian contact for the Center for Loss in Multiple Birth (CLIMB), Inc
 

http://www.lm.net.au/~schulz/siss

Murraylands Twin Loss - information and support for loss in a multiple pregnancy. Founded and Co-ordinated by Lynne Schulz, author of "The Diary".
 

http://www.bbf.org.au/home.asp

Bonnie Babes Foundation
The Bonnie Babes Foundation is a non-profit organisation established to counsel families grieving after the loss of a baby from miscarriage, stillbirth or prematurity and to assist medical research.
Ph: (03) 9800 0322
Fax: (03) 9800 0311
Email
enquiry@bbf.org.au
 

http://www.sands.org.au

SANDS - Stillbirth And Neonatal Death Support
SANDS is there.... promoting awareness, knowledge, support and understanding following the death of a baby from the time of conception through to infancy. It is a support group for parents who experience miscarriage, stillbirth, and newborn death.
SANDS Australia National Council Inc.
PO BOX 934
NEW FARM Q 4005
Ph (07) 3254 3422 (SANDS Q)
Fax (07) 3358 2533(SANDS Q)
Email
info@sands.org.au
 

http://groups.yahoo.com/group/OzMOST

OzMOST – Aussie Mums of Surviving Twins - a group of mothers who support each other through the
 

http://www.twinloss.org.nz

Twin and Multiple Birth Loss, NZ
 

http://www.october15th.com/

The Official Site of Pregnancy and Infant Loss Remembrance Day - October 15.
 

Other Sites of Interest

 

http://www.austprem.org.au

Austprem Inc. - Provides friendship, information and support to parents of premature babies
 

http://www.premmieplus.org.au

Support and information for families with premature babies
 

http://www.pipa.org.au

Preterm Infants Parents Association (Qld)
 

http://www.tabs.org.nz

 

Trauma And Birth Stress, is a Charitable Trust that serves as a support group of mothers who have stressful and traumatic pregnancies or births which affect their lives negatively for months or years afterwards.
 

http://www.bubhub.com.au

This site is packed full of information on pregnancy, baby and toddler services

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(c) 2004 TTTS Australia Inc.